Living With Celiac Disease

• Celiac disease is an autoimmune disorder that makes it difficult to digest and process gluten proteins. If  you are gluten intolerant and you ingest gluten, you could experience symptoms such as severe stomach pains, headaches, skin rashes, and upset stomach. You could also have respiratory issues.
  • An autoimmune disease is a condition in which your immune system mistakenly attacks your body. The immune system normally guards against germs like bacteria and viruses. When it senses these foreign invaders, it sends an army of fighter cells to attack them.
  • Gluten is a general name for the proteins generally found in all forms of wheat, including rye, barley and malt. Gluten acts as a binding agent to hold food together.
    • There is no gluten in:
      • Chocolate in its pure unsweetened form. However many chocolate products do have gluten because of additives..
      • Potatoes
      • Rice
    • There is gluten in:
      • Most baked goods including cookies, cupcakes and cakes
      • Beer
      • Crackers
      • Pasta - unless it is specifically gluten free
      • Pizza 
      • Pretzels
      • Wheat in all forms
    • For additional foods that do and do not contain gluten, see Celiac.org
  • Gluten intolerance: Gluten intolerance can develop at any age. If a person has gluten intolerance, ingesting gluten can cause digestive problems such as gassiness, abdominal pain or diarrhea. A person may have gluten intolerance and not have celiac disease..
  • Life expectancy: A person with celiac disease who follows a gluten free diet (see below) has a life expectancy similar to a person without celiac disease.  
  • Symptoms of Celiac Disease: The nine most common signs and symptoms indicating Celiac Disease are:
  • Diarrhea. Share on Pinterest. ...

1. Bloating. Bloating is another common symptom that people with celiac disease experience. ...
2. Gas. ...
3. Fatigue. ...
4. Weight Loss. ...
5. Iron-Deficiency Anemia. ...
6. Constipation. ...
7. Depression.

• In home test: Celiac Disease Foundation: https://celiac.org/about-celiac-disease/what-is-celiac-disease/
• Healthcare practitioners
  • Find a healthcare practitioner who specializes in Celiac Disease (physicians, dietitians and mental health professionals): https://celiac.org/about-celiac-disease/find-a-healthcare-practitioner/
  • Doctors 101 (Choosing, Working With Effectively, Switching, Paying  For): http://survivorshipatoz.org/admin/edit-topic.php?topicId=29
  • Research, how to participate in:
    • https://celiac.org/icureceliac/participate-in-research/
    • Clinical Trials 101: Everything You Need To Know About Clinical Trials http://survivorshipatoz.org/admin/edit-topic.php?topicId=60
    • Anxiety, and how to deal with it: http://survivorshipatoz.org/admin/edit-topic.php?topicId=258
    • Money: How To Save Money Day To Day: sandbox/topics/how-to-save-money-day-to-day-spending-less/         
    • Work and health insurance:
      • Genetic Information Non Discrimination Act (relating to employment and health insurance): sandbox/topics/genetic-information-nondiscrimination-act-gina/?sid=2765
      • Information About Gluten Free
        • Gluten Intolerance Group   gluten.org – including a newsletter, and one for kids
        • How to evaluate information about GF: https://gluten.org/2020/01/16/getting-to-know-your-information/   
        • Celiac disease https://gluten.org/2019/12/14/celiac-disease-centers-resource-list/
          •  
          • Living With Gluten Intolerance (Celiac Disease)
          • General nutrition questions – ask an expert dietitian: https://nationalceliac.org/ask-questions-celiac-disease/
          • If you eat food with gluten (if you have been “glutened”), what to eat:  https://nationalceliac.org/celiac-disease-questions/what-to-eat-after-being-glutened/
          • Supplements: How to check if Supplements are Gluten Free: https://nationalceliac.org/celiac-disease-questions/checking-if-supplements-are-gluten-free/
          • Losing Weight:
            • How to find GF items with less sugar:   https://nationalceliac.org/celiac-disease-questions/how-can-i-find-gluten-free-items-with-less-sugar/
            • Will GF foods help you lose weight? https://www.active.com/nutrition/articles/will-gluten-free-foods-help-you-lose-weight
            • If you are food insecure
              • Food banks across the country:
                • Feeding America.org
                • FoodPantires.org
• Food banks in New York City www.foodbanknyc.org
• Assisted Living Facilities
  • In assisted living facilities: https://nationalceliac.org/celiac-disease-questions/assisted-living-facilities-and-gf-meals/
  • Assisted Living Facilities: how to choose; how to pay for; what to look for in a contract with an assisted living facility sandbox/topics/assisted-living-facilities/
  • A gluten free diet
    • Getting started on a gluten free diet https://gluten.org/2019/12/14/getting-started-on-a-gluten-free-diet/  
    • Gluten free meal plans: (seven day, pediatric):  https://celiac.org/eat-gluten-free/meal-plans/
    • Pregnancy and celiac disease https://gluten.org/2020/01/15/pregnancy-celiac-disease/
    • Restaurant dining: gluten free
      • How to find a restaurant that serves gluten free food: The app: Find Me Gluten Free or online: https://www.findmeglutenfree.com/app (includes restaurants and grocery stores, including ratings)
      • Dining Tips in a restaurant:
        • https://www.beyondceliac.org/SiteData/docs/DiningTips/45a1646ed90f511d/DiningTipsFinal(8.5x11).pdf
        • https://gluten.org/2019/10/18/restaurant-dining-seven-tips-for-staying-gluten-free/
        • Purchasing Gluten Free Food
          • Resource directory of gluten free products: https://glutenfreeresourcedirectory.com/
          • Step-by-step guide to reading Gluten Free labels https://www.beyondceliac.org/SiteData/docs/ReadingLab/0af54668e9e88176/Reading%20Labels%20final.pdf
          • Three tips for reading gluten free labels https://gluten.org/2019/10/16/3-tips-for-gluten-free-label-reading/
          • Coupons and promotions are offered through: Gluten Intolerance Group  gluten.org
          • Travel
            • The app: Find Me Gluten Free or online: https://www.findmeglutenfree.com/app (includes restaurants and grocery stores, including ratings)
            • https://gluten.org/2020/01/16/summer-vacation-roadstop-smarts/
            • Overall
              • The Complete Guide To Gluten Free Living $19.95  https://nationalceliac.org/join/the-complete-guide-to-gluten-free-living-new/  
              •  

Food

• Recipes
  • 66 Gluten Free Recipes for the entire family https://www.womansday.com/food-recipes/g2559/gluten-free-dinner-recipes/
  • 1,400 plus recipes: https://www.allrecipes.com/recipes/741/healthy-recipes/gluten-free/
  • Celiac Disease Foundation: https://celiac.org/eat-gluten-free/recipes/
  • 70 plus recipes: https://www.delish.com/cooking/g4203/gluten-free-dinner-ideas/
  • Bon Appetit 50 plus recipes: https://www.bonappetit.com/recipes/slideshow/gluten-free-recipes
  • 10 Most Popular Recipes from My Gluten-free kitchen https://mygluten-freekitchen.com/10-most-popular-new-gluten-free-recipes-2017/
  • 15 Easy Recipes https://www.gimmesomeoven.com/15-gluten-free-recipes/
  • What to do with tortillas https://gluten.org/2020/01/17/one-tortilla-10-ways-10-gluten-free-meals-using-one-product/
  • 100 plus recipes from Epicurious: https://www.epicurious.com/recipes-menus/gluten-free-dinner-ideas-gallery
  • Gluten Free Baking: https://www.beyondceliac.org/gluten-free-diet/baking/
  • Living Gluten Free For Dummies https://play.google.com/store/books/details?id=6TpWqpDmlEUC
  • Food Safety: 
    • What You Need To Know About: http://survivorshipatoz.org/admin/edit-topic.php?topicId=69
    • Appliances: Risk of Cross- Contamination https://gluten.org/2020/01/15/appliances-risk-of-cross-contamination/

Support Groups:

• https://gluten.org/community/support-groups/
• Talking to friends and family about your need to be GF (in gluten.org)
• https://nationalceliac.org/celiac-disease-support-groups/
• A local resource person: https://nationalceliac.org/celiac-disease-support-groups/

Children

• Transitioning your child to a Gf diet  https://gluten.org/category/kids/
• Toddlers, Daycare and Gluten Risks “
• School year, Acing the    “
• Recipes for Children
  • Womans Day: https://www.womansday.com/food-recipes/food-drinks/g3231/gluten-free-recipes-for-kids/
  • https://www.beyondceliac.org/living-with-celiac-disease/info-for-parents/gluten-free-kids-recipes/

Volunteer

• Gluten Intolerance Group  gluten.org

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