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What To Tell About Your Health Condition and/or Treatment


What you want to tell people about your health condition is up to you. There is no right or wrong.

The following may help you decide how much to tell people:

  • You can share different amounts of information with different people. 
  • Consider what the person needs to know. For instance:
    • In a work situation, the person who makes plans for the immediate or distant future may need to know more about your prognosis even though it is only a guesstimate than a co-worker. 
    • A caregiver needs to know more about the details of your situation and needs than a friend on the other side of the continent.
  • Young people should only be given age appropriate information, and in an age appropriate manner. For more information, click here
  • Consider whether the person is a gossip or is otherwise likely to spread the information. 
  • If you are posting information on the internet, such as in Facebook:
    • Keep in mind that postings are frequently more available to the public than you may think. 
    • Current and prospective employers are likely to troll the internet for information about you. Telling about your condition in a public forum, or even indicating that you are a volunteer for a particular disease specific non-profit organization, will disclose the information.

For more information about disclosure, click on the following links:

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